Betty Long's Healthcare Blog
Guarding Your Health blog
Guardian Nurses founder and president Betty Long, RN, MHA, writes a blog on healthcare topics for consumers. Topics include advocacy, caregiving, elder care, hospitalizations and insurance.
Links to Trusted Websites
We are providing the links below as a few suggested resources for patients and their families who are struggling with the healthcare system. (When doing research on the internet, make sure you are accessing trusted sites). These organizations provide help and information to patients about diagnoses, medications, facilities, and financial assistance for medications.
Information about Diseases and Treatments
There are thousands of websites available for healthcare consumers to explore. We offer these to get you started with solid, proven information.
World-renowned integrated healthcare system based in Minnesota with branches in Arizona and Florida. Information available on their 3 main websites provides easy-to-understand information and tools for patients and families.
Easy to read website offering health information for the whole family. Offers tools like drug information, search by symptom, calculators and a dictionary.
National Cancer Institute
Sponsored by the National Institute of Health, our country’s medical research agency, the NCI website offers information on all things cancer — cancer topics, clinical trials, cancer statistics, research and funding and news.
Sharecare is an interactive social Q&A platform designed to greatly simplify the search for quality healthcare information and provide consumers with the necessary tools to make smart health choices and live healthier lives.
Information about Hospitals,
Nursing Homes and Rehab Centers
Use these sites to gain background information on facilities being considered. While consumer-friendly, you still may want to speak with a nurse advocate to help you decipher the information.
Nursing Home Compare
Sponsored by Centers for Medicare and Medicaid Services (CMS), this Medicare site provides detailed information about the past performance of every Medicare and Medicaid certified nursing home in the country.
Note: SNF = skilled nursing facility; Subacute Rehab = skilled nursing facility with some beds dedicated for patients needing short-term rehab
This website provides information on how well hospitals care for patients with certain medical conditions or surgical procedures based on costs, quality of care and the number of patients treated. This information will help you compare the quality of care that hospitals provide.
Assistance with Prescription Drug Costs
Partnership for Prescription Assistance
This website offer a single point of access to more than 475 public and private programs, including nearly 200 offered by pharmaceutical companies.
National Patient Advocate Foundation
A national non-profit organization providing the patient voice in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state and federal levels.
Patient Advocate Foundation
Companion agency to NPAF, this group provides professional case management services to patients facing barriers to healthcare access for chronic and disabling disease, medical debt crisis and employment-related issues at no cost.
Pennsylvania Health Care Cost Containment Council
Website of the independent state agency in Pennsylvania responsible for addressing the problem of escalating health costs, ensuring the quality of health care, and increasing access regardless of ability to pay. Offers reports, sometimes dated, on topics like hospital-acquired infections, hospital performance, surgical rates, etc.
Guardian Nurses Authorization and Consent Form
This one-page document, when signed by the patient, authorizes your nurse advocate to speak with your care team on your behalf.